Couple’s bid to light up blind South Shields baby’s life with sensory room

Paul Elliott and partner Stevie Fellows with son Ted.
Paul Elliott and partner Stevie Fellows with son Ted.

The devoted parents of a 12-week-old baby boy born with a rare sight condition are desperate to raise the funds needed for a portable sensory room.

Little Theodore Elliott, known lovingly as Ted, was diagnosed with clouding of both corneas at only a few weeks old.

Ted Elliott.

Ted Elliott.

He suffers from Primary Congenital Glaucoma and Congenital Hereditary Endothelial Dystrophy and has already undergone four operations in his short life.

His parents know he has to go through more surgery - including a cornea transplant.

At the moment Ted is only able to see light and dark - something which may never change for the rest of his life.

In a bid to make things easier for him, his parents Stevie Fellows, 22, and Paul Elliott, 25, of Simonside, South Shields, are desperate to buy a portable sensory room for him to call his own.

There’s nothing I want more right now than to be able to give Ted this sensory room.

Stevie Fellows

The only thing stopping the couple from purchasing it, is the £3,000 price tag.

It is hoped the sensory room will help give Ted the space to look at the lights, improve his vision as well as give him somewhere he can be calm after his operations.

Stevie, who is also mum to the couple’s daughter Eva, one, said: “Within five minutes of him being born you could tell there was something wrong with his eyes.

“The hospital brought a consultant over from the eye infirmary and they hadn’t seen a baby so young with glaucoma before, so he needed a an opinion.

“He has been under anaesthetic and had incisions in his eyes, laser surgery and he will also need to undergo a cornea transplant for the second condition.

“We have to try and clear the clouding of his eyes.

“I knew about glaucoma but I didn’t have a clue about the second condition.

“It is so rare to get in babies and he’s got both.”

Stevie added: “It is so stressful as we have hospital visits and childcare for Eva to sort and it’s financially draining because Ted is so young we don’t get any help for him.

“At times I feel like a failure as a mam.

“I keep going back through the pregnancy to see what I’ve done to cause it, like this is my fault.

“So to be able to get this sensory room for him would be great but right now I feel like we’re failing at that as the money is not there.”

She added: “At first I didn’t want people to know as I don’t like doing this kind of thing but we’ve had to swallow our pride as this is for Ted.

“We need to give him the best chance of keeping the sight he does have and for him to have a safe environment to play in.

“The whole situation is so stressful and at times I feel so guilty, I talk to him and play with him, but it’s so hard as he can’t interact like a baby would do.”

Stevie added: “Eva has been amazing. She has taken on the big sister role and really looks out for Ted. She is so protective.

“There’s nothing I want more right now than to be able to give Ted this sensory room.”

A fundraising page has been set up to raise the £3,000 needed.

To make a donation visit www.gofundme.com/sensory-room-for-teddy